Friday, February 25, 2011

IT'S OFFICIAL

!!!!!!!!!!!!!!!LOGAN IS IN REMISSION!!!!!!!!!!!!!!!!!

Michael Jameson came to see us today to tell us that Logan is officially in remission. He will continue with this treatment and then come back for an appointment in two weeks.

He will be reviewed every few weeks, then months, then yearly to ten years at clinic to keep an eye on him as there is a chance of this reoccurring.

He will have PET scans according to the protocol.  We are unsure of the exact timing.

Michael will be presenting Logan's case at the Lymphoma conference on Wednesday (a weekly event) and discussing it with the other Consultants there.

For those of you who dont understand remission... he is considered in remission until he is Cancer Free for 10 years.  Then he can be classed as cured (I think).
On behalf of Logan, Evan, Brad, Charlotte, Amanda, Alex and myself, I would like to thank you all for your support over the last few months (which seem like years).  We are honoured to have had you at our sides with your love, friendship, and strength.

Bless you all



And we begin again... Round 6

Hey Ya'll
We have begun again! Started last night with a blood transfusion - definitely a vampire! His  blood level was about 89 last night for his red blood cells, which was just a little low.  They only gave him one unit of blood at this stage... mainly cause I was too busy with meetings and things to get him in before 8pm.  But if he still needs it, they will give him some more at the end of this session, on Tuesday.
Yesterday, we had a bit of excitement. Pru, our initial registrar, came to see us while we were being admitted.  We were so happy to see her.  The three of us chatted for ages.  She is a real people person and looked after us so well when we first got our diagnosis and were living in fear.
Logan and Pru - they chatted for ages, catching up on each others adventures

So far today, Logan and I are waiting for the doctors.  He is onto his 2nd chemo of the day. We are in Room 17, which is a transplant room.
Advantages: Airconditioned, t.v., fridge, video, DVD, bathroom with shower, private, off a room off the corridor so very quiet, beautiful view.
Disadvantages: Airconditioned, very small, no curtains.
BUT WHO'S COMPLAINING!  Come visit Logan. We want this week to go as fast as possible for him.
We are also trying to come up with a way to thank the staff for all that they have done for us, and may continue to do in the future.  If you have any ideas, please let us know.  They have been AMAZING!
We will keep you posted, and let you know when we have heard from Michael.

love and health to all,
Tracy

Thursday, February 24, 2011

Pictures paint a thousand words

Logan, Brad, Geoff and Helen all excited


Our pilot (whose name escapes me)

Hearing the brief and learning about helicopters

The pilot giving instructions and discussing his particular helicopter (worth $2 million!)

The back seat of the chopper holds three - very cosy!

before the flight...

good thing they are all great friends, cause they had to snuggle to fit...

Logan, being neutrapenic, was allowed to sit in the front.

Brad took this shot from the back of Logan in the front

What a view

Helen

Geoff

Brad

Afterwards... on a high back...  on the ground




Wednesday, February 23, 2011

Community help

Many thanks to:

Silverdale Four Square 

and 

Lacy's Hair Design

for taking donations for Relay for Life...

another $150.00 raised

We are trying to pass our time with school work and fundraising efforts.  Waiting to go back into hospital and talk with Dr Michael seems to be taking forever.  We are very hopeful, but have to sit on the fence until we have his official opinion.

love to all,
stay healthly
Tracy

Tuesday, February 22, 2011

One to go

Hiya guys.
Not much been happening since my last post, so unfortunately this post wont be as long as my last.

Drivers of the world beware! I'm now legally allowed to drive, so cringe in fear as I try and own the roads.
I passed my learners yesterday with  a score of 33/35 which is an average score. Hopefully mum will give me my first lesson today or tomorrow, and I will be well on my way to first my restricted, then full licenses.

Yesterday was also 1 week after my last treatment, so had my bloods taken. Turns out I'm severely neutropenic (low white blood cells), 0.2 when it should be around 8. So that keeps me out of hospital for a couple more days. Bit of a mixed blessing really, on one side it gives me more time at home (no school, too dangerous) to relax and all that. On the other side, we really want to get in for my last treatment, and get it over and done with. So we get more bloods taken thursday to hopefully get me in on Friday, when we'll talk to Micheal about results. He's also taking my case back to the weekly lymphoma conference to see what they think should be done after treatment and I assume how long to give it before re-scanning me.

So I'll keep you guys posted on whats happening. I'll hopefully post again on Thursday or Friday.
Till then, be good and stay healthy.
Logan

Friday, February 18, 2011

What a feeling

Hiya guys.
Yes I know my post is late and that I said I would do it on Wednesday, but you should know by now that I'm a dedicated procrastinator, and in my defense I was waiting for results.

So here we go.
As you all should know, on Monday, me and dad flew down to the windy city for a PET scan to determine what all this chemo has achieved. Well the flight was rather pleasant, with the airport staff being a great help, offering assistance and sorting things so that I simply rolled out onto the tarmac before using my crutches to board. Even the weather was cooperating, with the best landing in wellington, and pretty much anywhere, I've ever experienced. Landing at around 4:30 we jumped in a cab and shot across town to Bowen Hospital and pacific radiology.

After some brief confusion born from entering the wrong building of the hospital, we found our destination and headed for reception. Thankfully they were expecting us, and the receptionist kindly led me to a separate waiting room and handed me a plastic flask of what can be only described as 'Grey goop', with a friendly "drink up". As oral contrasts go, it wasn't that bad. Had a faint taste of cherries surprisingly. Half way through the flask we get met by the man who would be taking care of me that evening, Ken. Man was he a laugh. He explained everything that was to happen, and asked all the regular questions. He even found out about my non-existent drinking and smoking history.

When the time came to start, unfortunately it required a lure, which Ken promptly and skillfully embedded in my arm. As lures go, it was in fact rather painless, still, I hate those things. At least they didn't waste time, they gave me the radioactive sugar that the PET scan requires and left me in a dark room to ferment for an hour. Now i can't really complain about this part, because I was tired, and they had even given me a blanket, so it was pretty much nighty night time. Unfortunately, sleep eluded me for the hour, so instead of a quick sleep it was a slow wait, and I was rather relieved when ken came back to tell me that the hour was past and that the sugar had been absorbed enough for them to begin the scan. In principal, my role in the scan is non-existent other then as the subject. In reality however, it requires an act of will to stay still for the 45-60 minutes required for a full body scan. One interesting thing about CT scans however is that a lot of the time, they inject a contrast into you during the scan, now this on its own is not the significant, it's the effects of that contrast that are. In their words "you'll feel rather flushed, and you may have the sensation that you are wetting yourself". And you do, it is the weirdest feeling ever, apparently one of the staff recently had a CT scan for the first time and got such a fright. But everything went well, we got the scan done and I didn't even wriggle that much at all.

Throughout all this dad waited diligently in the waiting room, half way through being join by the lovely Rochelle who now lives in wellington, and who kindly drove us to get something to eat and finally to Wakefield hospital after my scan was completed. Wakefield apartments, as we discovered, was no 5 star hotel, actually, it barely rates as 2 star motel in my opinion. But it was clean, warm and a place to crash for the night. In the morning we woke up slowly, we had nothing to do till 9 when the cafeteria opened for breakfast, then we just had to wait for our ride to the airport for the return trip which arrived at 10. And so we flew home, uneventfully and as peacefully as we arrived.

Now, Results. I know that this is what you lot are all waiting for. We don't have everything yet, for instance my scans haven't been looked at my Dr Jameson yet, nor has the radiologist got the first scan that was taken in America to compare with this new one. But they have left their initial report of what they can see with just this scan. According to them, the scan they took of me shows a healthy person, cancer free. And that's the big news. Now I should stress that this hasn't been confirmed my Micheal so its only 99% accurate, but if you ask me, i doubt that he'll find anything wrong with my scan. When we found out the news, mum promptly broke down. Mum got rather annoyed with me, and then a bit later with dad. Because when I heard the news, I didn't jump for joy (rather hard for a man in my position even had i wanted to) or cry out, all mum got was a simple "Sweet" and a big grin. Dad then followed suit an hour later with "oh lovely", so mum thinks we're both emotionless gits. But anyway, we get the final say on Monday, which is what I had planned to wait for, but since people have been getting rather impatient to hear news I've been forced to concede the information early.

And that brings us up to day. I still don't know the fate of my leg, I imagine that I'll get that from Micheal when we visit him on Monday.
So till then, be good and stay healthy.
Logan

Baking up a storm

On Wednesday, Logan, Nana Roose and I spent the entire day baking (well mostly Nana and I).  On Thursday we went to Logan's school staffroom at morning tea and charged door entry to come in and have morning tea with Logan.  The staff were amazing...  One staff member even charged other teachers $10 a photo with Logan...

Logan raised...


$600 for Relay for Life!


Thanks to all the staff at Hillcrest High School... they know what community means