Saturday, November 5, 2011

Happy Anniversary Baby... got you on my mind....

What does one say to someone who has reached the one year anniversary of their diagnosis... The lyrics to the song below... featured in the movie RENT, seem fitting... listen to the song on line or hire the movie... tis a bit different, but captures the essence of some peoples struggles...


Seasons Of Love lyrics

Five hundred twenty-five thousand six hundred minutes
Five hundred twenty-five thousand moments so dear
Five hundred twenty-five thousand six hundred minutes
How do you measure, measure a year?

In daylights, in sunsets
In midnights, in cups of coffee
In inches, in miles, in laughter, in strife
In five hundred twenty-five thousand six hundred minutes
How do you measure, a year in the life?

How about love?
How about love?
How about love?
Measure in love

Seasons of love
Seasons of love

Five hundred twenty-five thousand six hundred minutes
Five hundred twenty-five thousand journeys to plan
Five hundred twenty-five thousand six hundred minutes
How do you measure the life of a woman or a man?

In truths that she learned
Or in times that he cried
In bridges he burned
Or the way that she died

It's time now, to sing out
Though the story never ends
Let's celebrate
Remember a year in the life of friends

Remember the love
(Oh, you got to, you got to remember the love)
Remember the love
(You know that life is a gift from up above)
Remember the love
(Share love, give love, spread love)
Measure in love
(Measure, measure your life in love)

Seasons of love
Seasons of love
(Measure your life, measure you life in love)



My apologies for not writing yesterday... it was an overwhelming 24hrs that stretched us to the limit... both emotionally and physically. By yesterday arvo, Logan had reached breaking point and one by one we were ordered from the room.  Logan needed space and time to regroup.


Today, his emotional state is slightly better.  It was helped, of course, by Rosie, Nana and Grandad, and Paul and Yvonne all coming up from Hamilton and Te Awamutu to visit.  We miss them all so much.


Although Logan's blood counts are doing well, we continue to struggle with most other aspects of his well-being.  His blood pressure, glucose levels, diarrhea, fluid retention, electrolytes and all the other fiddly bits that I am naive about, are continuing to cause problems.  He is not what they would call 'stable' apparently.  I guess, that once his gut heals, and he can eat, then things will begin to return to normal. His body is similar to a large room of domino's that keep falling down, no matter what you do.


We are waiting to hear on Monday, hopefully, the results of the biopsy. They are about 98% certain that the runs are being caused by GVHD, but there is an off-chance that a viral infection is the culprit.  Meanwhile, Logan has to wait and tolerate!


Today's bloods:
White cells:10.92
Neutraphils:8.10
Hb:103
Platelets:11
Bilirubin:60


I have put up a couple more photo's... hope you enjoy...


Payback... snaps of Mum sleeping!!!

Grandad loves his Logan

Logan misses his Nana




Paul and Yvonne share a fun moment with Logan

Balloons decorate the windows to celebrate our special day



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