Hey everyone,
Charlotte reporting again.
It has been a crazy last 7 days.
Logan started getting bad headaches and slight temperatures towards the end of last week, but we just gave him some drugs (as ya do) and hoped it would go away.
On Saturday it was still there, but Mum and Dad went out for a well deserved evening at a friends, and he joined me in the garage for my birthday gaming night.
On Sunday the headache persisted, so we persisted even more with the drugs.
On Monday he woke up with vomiting and a temperature again, and couldn't stand any light so it was straight up to the hospital!!
They did some blood tests and discovered he had viral meningitis. Don't freak out, this form of meningitis is not the scary one that kills in 24 hours. Meningitis is just the term for when the protective membranes covering the brain and spinal cord, known collectively as the meninges, are inflamed.
http://en.wikipedia.org/wiki/Viral_meningitis
Theres a link if you want to read up some more.
He had a Lumbar Puncture earlier this week also and they found some abnormal cells in the spinal fluid. They are not sure if they are inflammation from meningitis or there is a small possibility they are something else. Logan spiked another temp last night but they are managing to keep it mostly under control. The famous Dr Jamieson is back and he said he is not certain it is viral but either way my little bro is fighting it off well.
The headaches are still coming and going but again, they are being controlled with meds.
He is able to tolerate light now for short periods which is a good sign and even ate toast this morning =)
That is all I have for now. I will keep you updated as I hear more.
Love to all,
Charlotte
xx
Wednesday, July 6, 2011
Wednesday, June 29, 2011
Make a Wish visit... and then he broke his leg...
Long time no speak people... a few weeks ago, Make a Wish Foundation were kind enough to grant Logan his wish. He received a special gungho, superfast, gaming computer, a family dinner out at a local restaurant named The Boston, and a fully catered LAN party. A fabulous gift... to which he politely said thankyou, then hurried off to school so he wouldnt be late! (and silly me was going to give him the day off to play with his new toy). SO PLEASE SUPPORT MAKE A WISH FOUNDATION WHENEVER YOU CAN...
the boy is impossible... like he doesn't have enough on his plate!
But I jump ahead... a quick summary is necessary to bring y'all up to date. a couple of weeks ago, the Logster had a CT scan to see how things were progressing... we had a visit last week with Michael who said everything was going well. He saw a couple of tumours (one in each lung for balance) to keep an eye on, but everything was going well. shortly after this Logan developed pain in his leg again... alarm bells began to ring and we became somewhat scared. I sent an email to Michael and he sent one back that evening (such a kind man). He said not to worry... nothing nasty... just a fracture in the distal femur!!!
My boy appears to have a very high pain threshold cause I am pretty sure I wouldn't be walking around on a broken leg! So after a few hours waiting to see a specialist, they decided that they are not going to operate (we didn't even know that was a thought!), but will instead leave it to heal au natural...
So we are back to using crutches. He is not allowed to weight bear for at least two weeks and then gentle touch down only...
Unfortunately he will now miss out on Tartan Day which he was performing in this Saturday (and I was so looking forward to seeing him in a kilt again). He is, however, hoping that he can still play the roles in upcoming drama sessions.
Logan is slowly getting used to attending school regularly again. He goes to Northern Health School Tuesday and Thursday, They even run a door to door service. Monday, Wednesday and Friday he does a couple of hours each day at Hillcrest.
Stem Cell transplant
As a precaution, Charlotte is going to be tested to see if she is a tissue match for her brother. Being the only full-blooded sibling, we are testing her first. We will then talk with a geneticist if she's not. She has a 1 in 4 chance of being a 4/4 match. As yet we have no need for a match, but if we do and she isn't, we may be calling for volunteers... but that's for another day.
Lastly... please keep in touch. Logan appreciates you texting him, and phoning or msn or whatever else it is that young people do... He gets a bit lonely I think, with just this old girl.
god bless everyone
stay healthy
Tracy
 | |
| Logan and all his presents... took ages to unwrap! |
 |
| Logan's Make a Wish sheepy |
 | |||
| Logan and his two lovely volunteers who helped him to chose his wish and then brought it to him |
 |
| Logan and best friend Rosemary... friends for 15years |
 | |
| NOOOOO!!!! No more hugs! |
 |
| Charlee and Daddy try to look intellegent |
 | |
| Rose and her 'other dad' |
 |
| Brad and Mum... a rare hug!!!! |
 |
| The Boston set a special table for us complete with glitter stars and candles... they waited on us like royalty... what a treat! |
the boy is impossible... like he doesn't have enough on his plate!
But I jump ahead... a quick summary is necessary to bring y'all up to date. a couple of weeks ago, the Logster had a CT scan to see how things were progressing... we had a visit last week with Michael who said everything was going well. He saw a couple of tumours (one in each lung for balance) to keep an eye on, but everything was going well. shortly after this Logan developed pain in his leg again... alarm bells began to ring and we became somewhat scared. I sent an email to Michael and he sent one back that evening (such a kind man). He said not to worry... nothing nasty... just a fracture in the distal femur!!!
My boy appears to have a very high pain threshold cause I am pretty sure I wouldn't be walking around on a broken leg! So after a few hours waiting to see a specialist, they decided that they are not going to operate (we didn't even know that was a thought!), but will instead leave it to heal au natural...
So we are back to using crutches. He is not allowed to weight bear for at least two weeks and then gentle touch down only...
Unfortunately he will now miss out on Tartan Day which he was performing in this Saturday (and I was so looking forward to seeing him in a kilt again). He is, however, hoping that he can still play the roles in upcoming drama sessions.
Logan is slowly getting used to attending school regularly again. He goes to Northern Health School Tuesday and Thursday, They even run a door to door service. Monday, Wednesday and Friday he does a couple of hours each day at Hillcrest.
Stem Cell transplant
As a precaution, Charlotte is going to be tested to see if she is a tissue match for her brother. Being the only full-blooded sibling, we are testing her first. We will then talk with a geneticist if she's not. She has a 1 in 4 chance of being a 4/4 match. As yet we have no need for a match, but if we do and she isn't, we may be calling for volunteers... but that's for another day.
Lastly... please keep in touch. Logan appreciates you texting him, and phoning or msn or whatever else it is that young people do... He gets a bit lonely I think, with just this old girl.
god bless everyone
stay healthy
Tracy
Monday, May 16, 2011
Sitrep
Howdy Folks, guess who.
I'm back baby.
I know I probably should have posted something earlier, but you know me. Never could post regularly, but I guess that just makes my posts SPECIAL.
Now as my brilliant Sis has filled you in, my ALCL has returned, with a vengeance.
To tell the truth when I first got the all-clear, i could all most hear an Austrian accent telling me, "I'll be back".
But what can you do about it?
This time it decided to make its presence known a lot more forcefully. It started with symptoms not unlike shingles (A pain in my shoulder, and a mild rash). But then my knee started acting up, that's when "terminator: returns" began.
So I've gotten stuck into my weekly chemo. Just had my second dose this afternoon. It seems to be going rather well, with lumps and bumps visibly reducing, and all my pain disappearing. Thankfully this Vinblastine hasn't been as hard on my system as far as i can tell. My bloods were right back up on Friday in preparation for today, so it cant be too bad. I'm just hoping i wont come to regret those words later on down the track.
Just to follow on with what Charlie said, HUGE thanks to everyone who has come and worked on the house these last few days. From those that just popped in to do an hour of sanding, to those like my uncle dean who sacrificed their weekend to do those jobs that just had to be done. Thanks to all of you guys, the Bathroom is now operational and the hallway and lounge have new architraves around the walls.
Just one more thing for tonight. Some of you may have heard of the "Make a wish" foundation, who grant wishes for children aged 3 - 17 who suffer from life threatening illnesses. visit their website if you want some more information. Well anyway, they got a hold of me about a month ago and we got to chatting. Long story short, they found that i was deserving, so now I'm expecting a new Gaming computer within the week.
That's all for today children.
Till next time, this is Logan saying, Be good and stay healthy.
I'm back baby.
I know I probably should have posted something earlier, but you know me. Never could post regularly, but I guess that just makes my posts SPECIAL.
Now as my brilliant Sis has filled you in, my ALCL has returned, with a vengeance.
To tell the truth when I first got the all-clear, i could all most hear an Austrian accent telling me, "I'll be back".
But what can you do about it?
This time it decided to make its presence known a lot more forcefully. It started with symptoms not unlike shingles (A pain in my shoulder, and a mild rash). But then my knee started acting up, that's when "terminator: returns" began.
So I've gotten stuck into my weekly chemo. Just had my second dose this afternoon. It seems to be going rather well, with lumps and bumps visibly reducing, and all my pain disappearing. Thankfully this Vinblastine hasn't been as hard on my system as far as i can tell. My bloods were right back up on Friday in preparation for today, so it cant be too bad. I'm just hoping i wont come to regret those words later on down the track.
Just to follow on with what Charlie said, HUGE thanks to everyone who has come and worked on the house these last few days. From those that just popped in to do an hour of sanding, to those like my uncle dean who sacrificed their weekend to do those jobs that just had to be done. Thanks to all of you guys, the Bathroom is now operational and the hallway and lounge have new architraves around the walls.
Just one more thing for tonight. Some of you may have heard of the "Make a wish" foundation, who grant wishes for children aged 3 - 17 who suffer from life threatening illnesses. visit their website if you want some more information. Well anyway, they got a hold of me about a month ago and we got to chatting. Long story short, they found that i was deserving, so now I'm expecting a new Gaming computer within the week.
That's all for today children.
Till next time, this is Logan saying, Be good and stay healthy.
Sunday, May 15, 2011
New Bathroom
The new bathroom is finally finished! Yay! Thanks to everyone that helped this weekend... Yvonne, Paul, Alex, Jasmine, Dean, Phil, Gil... That's all I can remember seeing. Sorry if I forgot anyone!
Logan got to have the first shower. I got to have one after. It was amazing! <3 water pressure!
Anyway, tomorrow Logan is having his second chemo dose. He coped pretty well with the first one, aside from the neutrapenic stuff, so this one should be a breeze!
Hugs and kisses,
Charlotte
xx
Logan got to have the first shower. I got to have one after. It was amazing! <3 water pressure!
Anyway, tomorrow Logan is having his second chemo dose. He coped pretty well with the first one, aside from the neutrapenic stuff, so this one should be a breeze!
Hugs and kisses,
Charlotte
xx
Saturday, May 14, 2011
Working Bee
Hi all!
This weekend we are having a working bee at our house to try and finish the bathroom and other odds and ends that need to be done around the house so that we can focus on getting Logan better.
If anyone has some free time today or tomorrow we would greatly appreciate it! Lunch and dinner will be provided :)
Hugs and kisses,
Charlotte
This weekend we are having a working bee at our house to try and finish the bathroom and other odds and ends that need to be done around the house so that we can focus on getting Logan better.
If anyone has some free time today or tomorrow we would greatly appreciate it! Lunch and dinner will be provided :)
Hugs and kisses,
Charlotte
Monday, May 9, 2011
Update
Hi everyone,
Just a quick update to let you know that Logan's chemo has been moved forward and is now starting today.
They are worried if they leave it much longer that the cancer will metastasize more.
He will only be up at the hospital for the afternoon then should be home again.
Hugs and kisses,
Charlotte
Just a quick update to let you know that Logan's chemo has been moved forward and is now starting today.
They are worried if they leave it much longer that the cancer will metastasize more.
He will only be up at the hospital for the afternoon then should be home again.
Hugs and kisses,
Charlotte
Sunday, May 8, 2011
Sad News
Hello everyone,
Unfortunately over the last few weeks Logan has been getting more and more exhausted and his knee has become extremely sore. He had an appointment on Wednesday with Michael who was sorry to tell us Logan's monster has come back. So far, it is in the subcutaneous tissue between his stomach and skin, in the bones in his leg and on his skull. He met with Michael on Thursday and he was given several options of how we are going to fight it this time. He has opted to have a chemo called Vinblastine. He will have this for 10 minutes every week and will not have to stay over night (fingers crossed). The pros of this are he gets to sleep in his own bed, he won't feel as ill, will have more energy and might even be able to go to school every so often if he feels up to it. They will know if the Vinblastine is working or not after about a month. If it is not working then we will go back to the more heavy duty chemo. But so far Vinblastine has had a good response rate.
My little brother is a fighter, but please send your prayers.
Chemo isn't starting for about a week from now, as he has a small dose of pneumonia at the moment.
Visitors are more than welcome at our house, but please ring first as Logan gets very tired.
Thank you everyone for your support over the last few months.
We did it once, we'll do it again.
Love Charlotte
Unfortunately over the last few weeks Logan has been getting more and more exhausted and his knee has become extremely sore. He had an appointment on Wednesday with Michael who was sorry to tell us Logan's monster has come back. So far, it is in the subcutaneous tissue between his stomach and skin, in the bones in his leg and on his skull. He met with Michael on Thursday and he was given several options of how we are going to fight it this time. He has opted to have a chemo called Vinblastine. He will have this for 10 minutes every week and will not have to stay over night (fingers crossed). The pros of this are he gets to sleep in his own bed, he won't feel as ill, will have more energy and might even be able to go to school every so often if he feels up to it. They will know if the Vinblastine is working or not after about a month. If it is not working then we will go back to the more heavy duty chemo. But so far Vinblastine has had a good response rate.
My little brother is a fighter, but please send your prayers.
Chemo isn't starting for about a week from now, as he has a small dose of pneumonia at the moment.
Visitors are more than welcome at our house, but please ring first as Logan gets very tired.
Thank you everyone for your support over the last few months.
We did it once, we'll do it again.
Love Charlotte
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